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The Cure JM Foundation: Volunteers working to find a cure.
Juvenile Dermatomyositis and Juvenile Polymyositis are the most common forms of JM (Juvenile Myositis) - a rare autoimmune disease that affects approximately 17,000 children and adults, and nearly 1,000 new cases are diagnosed in the US every year. JM causes a variety of debilitating symptoms
including:
• Muscle weakness and pain
• Severe fatigue
• Rashes
• Swallowing and digestive difficulties
• Lung and heart problems
• Vasculitic ulcers
• Calcinosis
Some children may experience a remission, while others will battle JM their entire life,
and complications from this disease can prove fatal. Medication can help to alleviate the symptoms of Juvenile Myositis, but there is no known cure.
As its name implies, the
Cure JM Foundation, a 501(c)(3) non-profit
organization, was created specifically to find such a cure, while also providing
support and information for families suffering from JM.
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| This website is provided for educational and informational purposes only. Cure JM is not engaged in rendering medical advice or professional services and this information should not be used for diagnosing or treating a health problem. The site author and the content providers make no representation or warranties, expressed or implied. Providing links to other websites does not imply that Cure JM endorses the information or services provided on those websites. The organizations operating those websites are solely responsible for the content found on their websites.
©2004-2010 Cure JM Foundation. All rights reserved.
Please review our privacy policy.
Site designed by Gary Bickal,
GBST Media Services.
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Voting for the August Pepsi Refresh Project closed at Midnight on August 31st. At 6:00AM on September 1st, it was announced that the Cure JM Foundation was the #1 Finalist in the $250,000 category. The Grant Review process is currently underway, and on September 22nd Pepsi will announce the Official Grant Recipients. Thank you to everyone who voted every day, and everyone who rallied their friends and family to vote, especially during those final crucial hours. This grant will substantially increase our research budget. Check back after September 22nd for the official announcement. For more information on the Pepsi Refresh Project, please visit: http://www.refresheverything.com
While you're on the Pepsi Refresh site, please consider supporting these worthy Gulf projects.
Personal Learning Center: http://gulf.refresheverything.com/plci
Homes of Hope for Children, Inc: http://gulf.refresheverything.com/homesofhope2
Mother Hubbards Cupboard: http://gulf.refresheverything.com/mhc
A big thanks to Turtlebox Productions who has worked tirelessly with Cure JM to produce these new, informative videos.
Video for Newly Diagnosed Patients: Click Here
Fundraising Video: Click Here
On September 18th, a group of Intel employees will be taking part in a charity ride and raffle to benefit Cure JM. Click here for more information..
Organized by our young JM adults, this event is for all JM families. Educational conference and gathering will be on Sat., Sept. 11th; and a team of Cure JM patients, family and friends will run or volunteer for the Chicago Half Marathon & 5K on Sunday, Sept. 12th. Register by setting up your fundraising page at: www.FirstGiving.com/curejm or click here for more information about the event.
Join us Sept 11th, 2010 at the Hillsboro stadium just outside of Portland Oregon for the second annual Cure JM concert. Headlining this year's event is native to the Northwest and season six Idol contestant Blake Lewis. Joining the line up this year is Savannah, Jessica Lerner
(click here for a song written by Jessica Lerner about a special JM child) and Shelby Marie. See concert website for more details.
www.curejmconcert.myevent.com |
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