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Site updated:
3 February, 2010

 

   

Cure JM Volunteers
The Cure JM Foundation: Volunteers working to find a cure.

Juvenile Dermatomyositis and Juvenile Polymyositis are the most common forms of JM (Juvenile Myositis) - a rare autoimmune disease that affects approximately 4,000 children in the United States. JM causes a variety of debilitating symptoms including:

•   Muscle weakness and pain

•   Severe fatigue

•   Rashes

•   Swallowing and digestive difficulties

•   Lung and heart problems

•   Vasculitic ulcers

•   Calcinosis

Some children may experience a remission, while others will battle JM their entire life, and complications from this disease can prove fatal. Medication can help to alleviate the symptoms of Juvenile Myositis, but there is no known cure.

As its name implies, the Cure JM Foundation, a 501c(3) non-profit organization, was created specifically to find such a cure, while also providing support and information for families suffering from JM.


Patients Needed!

Twin/Sibling Study
The National Institutes of Health is seeking research subjects from the JM community. Click here to see how you and your family can help.

In Memory of
Mikey Galvin

Still with us in spirit, inspiring us to find the cure! In memory of Mikey and the other children and adults who have lost their lives to JM, we are determined to find the cure. Click here to learn more.


This website is provided for educational and informational purposes only. Cure JM is not engaged in rendering medical advice or professional services and this information should not be used for diagnosing or treating a health problem. The site author and the content providers make no representation or warranties, expressed or implied. Providing links to other websites does not imply that Cure JM endorses the information or services provided on those websites. The organizations operating those websites are solely responsible for the content found on their websites.
©2004-2010 Cure JM Foundation. All rights reserved. Please review our privacy policy.

Site designed by Gary Bickal, GBST Media Services.

Breaking News and Events

Cure JM Extends Grants to Two Research Centers! (Details Coming Soon)

2010 ANNUAL CONFERENCE / FUNDRAISER in Austin, TX

Spend Valentine’s Day weekend listening to national JM experts, meeting other JM families and helping us raise funds through the Austin Marathon and Half-Marathon. Educational seminar will feature presentations from Dr. Lauren Pachman (Chicago Children’s Memorial Research Center and Hospital), Dr. Lisa Rider (NIH) and Dr. Ann Reed (Mayo Clinic).

Click here for more information.

If you are interested in attending or running, please register at: www.firstgiving.com/curejm

Team EmilyCongratulations to our Latest Cure JM Heroes

Meet Emily, an amazing 10-year-old with JM, as well as her parents and teachers. More commonly known as “Team Emily”, they have raised nearly $6,000 for Cure JM.Click here to learn more about them.

Fundraiser Recap

From concerts to marathons, 2009 has been a busy year for Cure JM fundraisers. Click here for event photos, fundraising recaps and more.

New Videos from Cure JM Families

Visit our Links page for heart-warming, and in some cases heart-breaking, videos about the fight against JM.

Shopping online? Click here first.

The iGive online mall has over 700 stores to choose from, inluding top names like Amazon, Barnes & Noble, Dell and Office Depot. And when you do your online shopping through iGive.com, up to 26% of your purchase will go to the Cure JM Foundation! Click here to start shopping.

Your Input is Needed

Doctors at the Juvenile Myositis Center at George Washington University, in Washington, D.C. (supported by Cure JM Foundation) have developed a survey for JDM parents and patients to help doctors better understand the issues surrounding the transitioning of health care for children with JDM moving from pediatric-level care to adult-level care. Please participate so these doctors can help us all. The surveys are anonymous and you may participate even if your child is not yet ready to transition. Thank you for helping the cause!

Click here for the Parent Survey

Click here for the Patient Survey