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The Cure JM Foundation: Volunteers working to find a cure.
Juvenile Dermatomyositis and Juvenile Polymyositis are the most common forms of JM (Juvenile Myositis) - a rare autoimmune disease that affects approximately 17,000 children and adults, and nearly 1,000 new cases are diagnosed in the US every year. JM causes a variety of debilitating symptoms
including:
• Muscle weakness and pain
• Severe fatigue
• Rashes
• Swallowing and digestive difficulties
• Lung and heart problems
• Vasculitic ulcers
• Calcinosis
Some children may experience a remission, while others will battle JM their entire life,
and complications from this disease can prove fatal. Medication can help to alleviate the symptoms of Juvenile Myositis, but there is no known cure.
The
Cure JM Foundation, a 501(c)(3) non-profit
organization, is an all-volunteer group managed by families and friends of JM patients. Created specifically to find a cure for this disease, the Cure JM Foundation is working to raise awareness of JM while also providing support and information to families suffering from JM.
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| This website is provided for educational and informational purposes only. Cure JM is not engaged in rendering medical advice or professional services and this information should not be used for diagnosing or treating a health problem. The site author and the content providers make no representation or warranties, expressed or implied. Providing links to other websites does not imply that Cure JM endorses the information or services provided on those websites. The organizations operating those websites are solely responsible for the content found on their websites.
©2004-2011 Cure JM Foundation. All rights reserved.
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Mark your calendars for the Cure JM Annual Educational Conference
and Fundraising Event, October 12 - 13, 2012. This year’s event will be held in conjunction with the Under Armour Running Festival in Baltimore, MD. Click here to find out more and register to help.
Click here to review the top Cure JM highlights of 2011.
Thanks to the Gillen family for increasing awareness of Juvenile Dermatomyositis on a national level. They were featured on the CBS Early Show in a story about pet therapy. Their daughter, Ally, had a severe case of JM, but her recovery was aided through pet therapy. Ally is doing well now, and her family is giving back by providing pet therapy to other hospitalized children.Click here to watch.
Set-up your own personal fundraising page for Cure JM or make a donation to an existing family fundraising page. These special fundraising pages allow our Cure JM families to share their journey with JM, and they enable donors to leave a personal message for the family affected by JM.
Shelby Douthett, singer/songwriter and avid supporter of Cure JM, has posted her new music video.
Shelby has performed at the Cure JM Benefit Concert for the past three years. Enjoy her wonderful music and share the link with your friends and family.
Click here to see the latest additions to upcoming Cure JM fundraisers.
Cure JM wristbands are now available. They're the perfect way to show your support for the Cure JM Foundation. Click here for more information.
Musician and JM dad, James Cademan, has written an inspirational song about
his daughter's experience with JM. "You're Beautiful Today (Erin's Song)"
can be downloaded from iTunes for 99 cents. All proceeds from downloads
will benefit Cure JM!
Click here to download the song.
Click here to watch the music video.
Congratulations to Michelle Schneider who recently had her case study published in the medical journal, Pediatric Health Care. The article is titled “Juvenile Dermatomyositis: A Case Study”. This article will go a long way in raising awareness of JM with pediatricians.
Click here to read the case study.
Learn how little Kory is helping to get out the word and raise funds for the Cure JM Foundation.
Click Here.
A big thanks to Turtlebox Productions who has worked tirelessly with Cure JM to produce these new, informative videos.
Video for Newly Diagnosed Patients: Click Here
Fundraising Video: Click Here
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